It is 11PM. I was expecting that by now, it would be getting better. It is still so heavy. Sometimes I feel torn between this world and the next; wanting to be a mother, wife, nurse, daughter, and member of the community here. Part of me wants to meet my sweetie in heaven. In our Thursday group, one of the parents shared a poem that is so fitting for our family too.
The Broken Chain
We little knew that day,
God was going to call your name.
In life we loved you dearly,
In death, we do the same.
It broke our hearts to lose you.
You did not go alone.
For part of us went with you,
The day God called you home.
You left us beautiful memories,
Your love is still our guide.
And although we cannot see you,
You are always at our side.
Our family chain is broken,
And nothing seems the same,
But as God calls us one by one,
The chain will link again.
Author - Ron Tranmer
Most of the time I function, enjoy Chloe, work, live, laugh even. We are managing fine, and learning a new way of living and loving. I know she is OK now in paradise, not in pain, and I am grateful for all of that...I just miss my baby girl.
The Broken Chain
We little knew that day,
God was going to call your name.
In life we loved you dearly,
In death, we do the same.
It broke our hearts to lose you.
You did not go alone.
For part of us went with you,
The day God called you home.
You left us beautiful memories,
Your love is still our guide.
And although we cannot see you,
You are always at our side.
Our family chain is broken,
And nothing seems the same,
But as God calls us one by one,
The chain will link again.
Author - Ron Tranmer
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| On this very day 1 year ago, with my cousin |
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| Before bathtime hurt very much, she loved having her hair washed |
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| March 2010, 3 months old |
Praying for you. I feel lost for words this very moment but the hurt your missing your baby in your words just breaks my heart. My god continue to lift you up.
ReplyDeleteThis post breaks my heart. We think of you often and are so excited to see you all next. I can only imagine the heartache that you are going through. I am so sorry that you are suffering and I pray that God will give you comfort. Elle is a precious and wonderful gift to everyone who met her. We love you. Love, Jennifer
ReplyDeleteBecky, I am so sad and my heart so heavy for you.
ReplyDeleteI do check your blog daily, as I do my EB blog reads every day. I think of you and your family every day. Honestly. Please know people are still here for you.
Dear Becky: My heart hurts right along with you. Your family is always in my prayers. You just have to keep remembering, Elle is pain free and smiling that wonderful smile of hers in paradise. All the EB angels are playing and having a wonderful time, no more boo boos.
ReplyDeleteKeep the Faith and hang in there. Love and Peace Love Leah's Nana (still missing my precious grandaughter)
Hi! Thank you for posting. I check often curious how you are doing. Of course you miss her, she was so beautiful!!!
ReplyDeletePraying for wonderful blessings in your life and sending you the biggest hug ever.
Of course you miss your baby girl! She is so precious and such a blessing. I pray that God will comfort you as only He can. What a wonderful reunion you will have someday...
ReplyDeleteThinking of you,feel your lose so much
ReplyDeleteThinking of you and praying for strength and peace for you and your family..We know first hand the heartbreak you are dealing with. Stay strong...and know lots of people your daughter never met loved her and prayed for her..Having a son with EB I felt like she was fighting for all of us and I thank you for sharing your journey...Hugs,
ReplyDeletebeth
I pop on here frequently...hoping for an update from you. I think about you often and still talk to Elle nightly before bed.
ReplyDeleteI wish I had words of wisdom or something to say that would make it better. I know nothing can. I hope that knowing that others still care eases your heart just a little.
Thank you for sharing the beautiful pictures of Elle.
Hugs
Denise WI
Thank u so much for posting. I know it was probably difficult. We all love u so much and are in pain for losing Elle. We will find her again...like hide and seek. And what a treasure we will find!
ReplyDeleteBeautiful poem!
I often think about you and your family. Your story, along with that of the other EB children, has changed my life. I appreciate that you shared your journey with us. My heart breaks reading that you are still in so much pain. Please know that there are still a lot of people praying for your family. Sweet Elle was so beautiful!
ReplyDeleteIt's Mother's Day today and I thought of you!!
ReplyDeleteThinking of you and Elle frequently.
ReplyDeleteDenise WI
I think of you often and continue to pray for comfort and peace for your sweet family.
ReplyDeleteStill thinking of you all!
ReplyDeleteDenise WI
Thinking of you and continuing to pray for your family!
ReplyDelete