Everyone, it was a very sad day. Our baby friend with EB 2 doors down in the ICU has left us. Please read Bella's blog and send your prayers, good thoughts, energies, whatever it is that you believe to lift up Bella's family.
Dance in heaven with light heart, perfect body, no pain or illness sweet baby girl. Your life was short but so meaningful. Your fight has taught others so much. You will help cure EB.
Praying for Tim, Angi and Ali today, but also continuing to pray for your sweet Baby Elle. These kid of days are hard on the rest of the EB families as well. Also praying for Drs Wagner and Tolar, they must be heartbroken as well.
ReplyDeletePraying for a better day today for Elle from Waterford, MI
I have silently been following Bella, Elle, Jonah and Tripp. Though I am grieving for the loss of Bella I continue to send positive thoughts, encouragement and love for Elle, Jonah and Tripp and families. Please hang tight and fight the good fight!
ReplyDeleteI too am heartbroken over the loss of Bella. I went to bed crying and have been crying since I got up.
ReplyDeleteStill thinking and praying for baby Elle.
Denise WI
This is a hard day for EB families. When a family loses an EB child it causes worry for the other families.
ReplyDeleteI am sending my love to Eb families.
Cheryl
I am heart broken about Bella. She is EB free and no longer in any pain. It is a rough day for the EB community.
ReplyDeleteExtra prayers for precious Elle. Keep the Faith. Love and Peace. Love Leah's Nana
I am connected to the EB community through your blogs. Bella, Tripp, Jonah, Daylon and now Elle...I follow your stories daily. Losing Bella is heartbreaking. I am so glad the internet has provided a place for people to connect, not only those of you who are personally suffering because of EB. But for us who had never heard of EB before. Awareness is a key to a cure. And by sharing your story so many people are becoming aware.
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