Elle is about the same. She is sleeping a lot, healing. Her lungs are "junky" sometimes, but vary through the day. She has been maintaining her sats, but sometimes it takes a little help, and there are moments where she does not settle well. I left her unsettled tonight
-it is Steve's night with her and I better do my job and go to bed. I slept through rounds this morning (yesterday was my night and I slept 2 1/2 hours). I mean 5 physicians were all around me in Elle's room whilst I snored. They probably think I'm an idiot! Embarrassing- Steve tried to awaken me but I have NO recollection of it.
So the current plan is - No plan. We are waiting to see Elle's response and if she continues to improve, they want to place her Hickman catheter (central IV access to one of her great vessels) middle next week.
Stefan and Chloe went to a Twins game tonight -funny we came all the way to the Midwest so to watch the Oakland A's play! I guess Chloe had a lot of fun, trying to sit in everyone's seat.
I'm glad to hear that at least some of your family was able to go out for some Friday night fun! I know exactly what you mean about sleeping through stuff! I keep staying up so late with Daylon that I'm missing rounds. I'm sure they think I'm some irresponsible mom, but your body can only take so much,ya know? Don't feel guilty! You're a great mom! I've seen you with Elle. She couldn't ask for better parents. You guys love her tons! Thanks for the update! We've been thinking about you guys!
ReplyDeleteThanks for the update. You have to take care of yourself too. If your body needs sleep, you will sleep, no matter what goes on around you.
ReplyDeletePlease remember that your EB family is out here praying for your precious Elle. Thanks for letting us take this journey with you. Take care and give Elle a gentle kiss for me. Tell her that Leah is watching over her and protecting her. Love Leah's Nana
I'm happy to be on the blog. I tried to get on the other day, but something went haywire. Today, I'm on. I'm so thrilled to read about Elle and how you're doing. I hope you two get enough sleep. I'm praying for you and sending kisses to you and Elle. Let me know if there is ANYTHING I can do for you at all. Of course I am sending positive energy and prayers your way alot during the week. Candace
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