Elizabeth Cady

Elizabeth Cady
Our Darling Girl

Tuesday, September 28, 2010

Day +6 September 28

This is her Amish girl head gear.  Her eyes are pretty swollen, but we're working on it
This is the red blood cell from Uncle Timmy

Today, went fine.  Elle remains stable, no new issues.  She is still fluid positive but is starting to pee a little -the fluid is slowly releasing; keep it flowing.  She is getting Bumex twice a day and a new diuretic Metolazone via her G tube now.  Her kidney's still stressed, but her liver and lungs seem to be holding. 

The weird thing, is that when we were doing her body dressing today, we were expecting and fearing that her skin would be so bad, but her wounds actually looked relatively good.  There was some healing and the tissues look pink instead of bleeding.  Have to do her limbs yet, and hoping they also look good.  Don't know if it is the mesenchymal cells or that I started using medical honey again and increased the amount of aquaphor, or that she isn't moving to damage herself?  Maybe a combination.  I'll take it. 

Stefan made us laugh though. Four of us were turning her during dessings and I wanted to get her off of the wet bedding and so rolled one side of the bedding under her then we had to roll her over the "hump" to the other side and take the old bedding out.  When she was all positioned, he said, "OK, are you ready to do the dry hump?"  We all tittered, Stefan blinked a couple of times and said, "Becky, will you explain to me later?"  Then the light went on and he said "Ohhh" sheepishly (More tittering). 

Stefan is exhausted, only slept an hour last night from anxiety I guess.  He went to bed finally at 900 PM and Chloe right after.  I went in to check on them a bit ago and found Chloe had snuck into bed with him.


  1. Hi Becky: Thank you so much for the update and the pictures of your precious little girl. Good news about her wounds looking so much better. I bet it is a combination of everything you mentioned. I always think that once they can't really move around so much they don't really damage their skin. Give Elle a hug and kiss for me. Love and Peace. Love Leah's Nana

  2. Hi Becky, Im glad to read that there are no new issues with Elle. I will pray every day for her continued recovery. Thank you for keeping me updated as i look forward to reading about your beautiful daughter and your wonderful family.
    Daylons auntie Kristyn xoxoxoxo

  3. I love hearing that things are going pretty good for Elle. Hang in there sweet baby.

    Dont forget that you two need to take care of yourselves too.

    Denise WI


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