Elle had her G Tube replaced today without too much issue. The Dr. was great but his nurse was a little rough with her, pulling and tugging at her tube to see a marker number. Elle was screaming. The tube came out easily and the new one slipped right in; a Mic-key button. The new tube is lower profile and works well.
Other news is that had no CMV in her urine, her CT showed some improvement, which means her lung infection is gone or nearly and she is back on track. She starts chemo at 0400 on Monday morning and I am scared. Thankfully, Steve will be back Sunday.
She continues to play and smile; she delights me with her happiness every time I approach her crib.
Elle trying out a new teether her Grandma Bonita bought her. She went to 3 stores to find the right one!
Chloe is doing just great. We are working on a special DVD for Elle and she had us all entertained with dancing and her version of the ABC song. A poetry and music therapist helped guide us. Dad surprised me too with a contribution to the effort; a sweet lullaby that my grandpa used to sing to him. It brought me to tears. The services here are wonderful. Carin, the Family Child Life specialist and others facilitate so many activities, teaching moments, and help us find ways to make memories and soothe Chloe and the baby.
Carin, engaging Chloe. She is wonderful.