Elizabeth Cady

Elizabeth Cady
Our Darling Girl

Sunday, October 17, 2010

Days +23 and +24

So ready for breakfast the other day after being up all night and ended up at a pub! They did serve breakfast thankfully.  Angela, we tried Als breakfast, but it was crazy busy and TINY.  I barely fit and Chloe wasn't having the wait.  We will try it again though.

Our Dolly is holding well.  She is still very sick.  A yeast in her blood is very serious and everyone has their brows furrowed.  She is on good antibiotics and antifungals though and the new arterial line is not growing anything.  However, the left PICC is also growing the yeast now. Her liver and bilis are still not good and she isn't peeing.  I know many of you already pray all of the time, but she has suffered so many insults to her immune system, organs, and wounds.  I don't know how much more she can weather.  So please, keep up the love and prayers.  She needs us.  She needs a miracle. 

She is weaning off blood pressure medicines again and her resident, Maggie was very pleased about that.  Other numbers are fine, but the best numbers are her WBC of 3.4 and absolute neutrophil count of 2600 -go Elle!!  As I have said before, the medicines in combination with her own body's immune system is what will ultimately kill those darn bugs - and a little extra prayers won't hurt.  As her grandma said (in hungarian), "God put you on this Earth and he can heal you". 

We will continue to fight for her as long as she wiggles, looks at us, and squeezes our fingers against the vecuronium that is supposed to paralyze her.  She says "I eat veck for breakfast!" and keeps moving. She has a lot of fight and as I have said before, she is the toughest person I know. 

Chloe is having fun, getting involved in whatever activity is currently going on.  She is a joy (and a pain -but I couldn't love her more.  This trip would be so much harder without her antics!)

Chloe amazes me sometimes.  She picks up more than we realize.  The other day, we were talking about Elle at dinner and Chloe said, "She is in the hospital getting better and the turquoise machine is fixing her blood".  Then she said her sister is going to get better and come home and play with her and grow up as big as her.  I told Chloe, "That is my dream" and she said, "That is my dream too". OK, she's three.  And she does worry about her sister...and us.  She said that her dad slept well, and asked if I slept.  I said I did and she told me good job!

Lion cubs -so soft and playful

Grandma spending time with Elle before returning home; we already miss her
Former firehouse turned bagel shop, Chloe giving the fireman's pole a whirl



  1. Hello,
    My name is Alexandra and I live in Australia. I just wanted you to know that I am out here in cyberspace, reading your blog every day and hoping with all of my heart that Elle will overcome all the side effects involved with BMT and be given the chance to go home healthy and happy. You are in my heart and in my thoughts.

  2. Following your journey, thinking of you all and wishing Elle all the best. Hope she gets better soon.
    Martina, UK

  3. What a wonder girl little Elle is! I pray for her and you every day. When I read your blog I amaze at all the strength and fight Elle has! She seems to know that everyone around her is fighting for her and loving her. This alone gives her strength. I will pray for her and ask God to fight harder and harder through this current infection. God be with you always!

  4. Praying for Elle and your family every day!

  5. Hi,
    I just wanted to let you know that I am praying for your sweet little Elle. You're right, she looks like a doll!
    Three year olds are a trip! You never know what's going to be coming out of their mouths next! Good or bad...LOL.
    I'm glad you got some rest. I'm sure it's hard to keep up with all you have to do in a day.
    Lots of love,
    Mandy in Louisiana

  6. Poor baby! This is the thick of it, right now. I hate to hear that she's having a hard time. She'll be be better before you know it! There are so mant people praying for her and she has the best doctors money can buy! I think that with how much she fights against the vec, she must be one tough girl! Love to you all! Jenn+

  7. I'm praying for Elle everyday. Look how many people's lives are being changed and touched, directed to Jesus \0/ May God lighten your load and bring you Peace,

  8. Oh, bummer! Al's Breakfast can be really busy -- particularly when the U of M students have exams. Another day! :)

  9. That is also my dream for Elle to come home and grow as big as Chloe to play together. I would love that so much, and I pray even more now for that miracle to be. Elle is amazingly strong, and Chloe too, they get their courage and strength from two of the best parents I have known. Please let us know if you all need anything. Lotts of hugs and love from all of us back home.
    Love, Aunt Timea

  10. Hi Becky: Thanks for the update. So sorry that Elle is so sick right now. She is in the thick of the journey and with everyones prayers, things will turn around. God Is Good!
    Extra prayers for your precious daughter. Thanks for the pictures too. EB families are so special and beautiful.
    Love and Peace. Love Leah's Nana

  11. Just wanted to let you know that I continue to pray and think about Baby Elle during this most difficult time.

    Prayerfully yours,
    Krista Boyd (Keric's mom)

  12. Sorry to hear that Elle is having such a hard time with everything right now. At least her Art line is fungal free. Always look for the positive!

    Chicago, IL

  13. Praying for your SWEET BABY ELLE and your family!

    Becky (Texas)


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