Elizabeth Cady

Elizabeth Cady
Our Darling Girl

Tuesday, October 19, 2010

Day +26 October 18

Elle's Day nurse cracked us up talking to Chloe and making up the Blue Bird of Happiness, soon after, Chloe completed this drawing.
Sweet Elle had a little bit of a rough morning.  After I went to sleep, her pressures slowly drifted down as did her temperature.  She had to get quite a bit of fluid as well as the addition of NorEpi (her 3rd blood pressure med).  When I entered the room, there was a lot of quick moving to get her pressures up (from low 70s or 60s over30s and maps of high 30s to 40s -should be >50).  She did stabilize again, but the docs are worried as are we.  It was said that the yeast in her blood is being cultured out of all of her lines, her ET tube, and is likely in her organs.  It is a nasty bug that likes to stick and stick around.  She has all of the best medicines (anti fungals) so we have great care team, the best medicines, her counts are coming in (WBC 5.2 and ANC 4,400 today!), she is fighting, and we have God too.  Should be the right combination.
 Our other sweetie, skipped her nap and was so excited to pick up grandpa from the airport,she got a little overly awake.  she danced at RMH to the Nintendo Wii, then her dad gave her Cinnamon Toast Crunch right before bed (Thanks hon).  She started laughing and flopping around on our bed like a freshly caught fish as I was trying to get her to bed!  I finally got there and she went out like a light!

video
After everything, she crashed for the night

8 comments:

  1. Lord, i ask you to continue to be apart of this family and team of doctors who are fighting for Little Elle. Please fill her parents wiht hope and faith and strength. Please give her doctors the right insight to fight these problems. We know you are with us
    \God Bless

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  2. I just wanted to let you know that I am praying for your little Elle!

    Love, Lisa (Wisconsin)

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  3. It's my first time to post on your blog, though I have been a regular visitor since September. Please know that I have been praying for sweet baby Elle daily and will continue to do so.

    Laura (Philippines)

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  4. Praying super hard for Baby Elle!

    Bella's friend in NJ - Tina

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  5. Go cells, grow! Thinking of you guys!

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  6. A little gift for you...

    Big Bird as the Blue Bird of Happiness:
    http://www.youtube.com/watch?v=WooaGkKSwpY

    and here's Joan Baez
    http://www.youtube.com/watch?v=_EjAQ7tSK44

    xoxox

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  7. Hi Becky: Will continue the extra prayers for precious Elle. Keep the Faith. Love you guys. Love and Peace. Love Leah's Nana

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  8. Elle has all the right stuff--her strength and will power, love from her family and "friends", a top notch medical team with all the right equipment and know how, we who pray for her and of course God..........
    Bless you baby Elle

    Candace

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