The Prisma "crashed" for the first time today; something about a fluid shift issue. She had to be taken off CRRT early. Lately it has been 12 hours to lock each of her Hickman ports with the anti fungal but today it is 20 hours. It actually helped her blood pressures. She just may get very puffy.
This evening, her temperature probe broke and re-inserting one would damage her throat and mouth so the night nurse figured out how to Jerry rig it. I'm grateful for his skills!
Pastor Dale came to visit Elle and me. He put his hand in hers, we prayed, ate, and I felt better.
Stefan actually got a stretch of sleep during the evening 5-11 PM. I know our hours have gotten so kooky, but I hope it did him some good.
Chloe and Grandpa Gil have really bonded and I am so appreciative that he has been here through this rough patch. When family is here, I know Chloe is loved and secure. I know her grandparents, Aunts, Uncles will always be there for her. She is happy.
|Family Child Life brought by this little hat for Elle -Keeping warm in style|
|Fabulous socks of the day in honor of Bella|
|Chloe's fab socks too|