|"Jammin with Jan" music on Tuesday|
|Grandpa, Tuba, Chloe, and Sully|
I am going to be a little medical for a bit in hopes that someone has insight on eradication of this fungus. Hopefully this yeast has not gone to far to manage. It is called Candida Parapsilosis in blood, skin, and airway. She is being given Abelcet at 10mg/kg/hr (amphoB), Voriconazole 60mg q12hrs, She also had a 2 time order for AmphoB nebulizer. We thought of decreasing or holding TPN to decrease sugars in her system that may feed the yeast (docs thought this a bad idea in that she may crash without the carbs in her hyper metabolic state). I also thought of decreasing or holding antibiotics since she was not having signs of current bacterial infections, but that too was not a helpful idea. We stopped Medihoney for the same sugar thought process (although infectious disease thought it wouldn't hurt) and instead are using Ketoconazole on her skin and trying to keep areas open to air as much as possible. Her Hickman, bilat fem PICCs, and new art line all come back positive on recent cultures and cannot be replaced at this point d/t few or no alternative replacement sites, need for access, and possible futility of it at this time.They are managing blood pressures and temps, and checking cultures every other day. Any other thoughts, ideas, insights??? Ask, research, think for Elle please. We are hoping in a couple of days she will start to turn around. She is still fighting for life and we want to help her!
Stefan and I are taking turns at her side. We did go to a Picnic with the Edlings and Ringgolds though (Daylon and Bella's families) at Hidden Falls in St. Paul for a couple of hours while dad watched the baby. Jennifer provided most of the meal which was delicious. We all had a good time, a nice break from the heaviness of the day. The kids are so fun to watch and all in the same age group. Later we played Bingo for a little bit then back to the hospital.
Chloe wanted to see her sister and drew her a picture. Elle still responds to our voices and touch and looks at us. Getting hard to keep her comfortable right now though since the Dilaudid and Versed drop her blood pressures, but we are still getting her there.
|Stefan does such a good job with head gear; here with RT|
|A rare look at her uncovered, unbandaged head|
|We took a couple of hours with the Edlings and the Ringgolds at Hidden Falls Thursday|
|See the little pumpkins and witch hats -Becca, one of the RTs drew them -I call her an" RTeest" -ha ha|